Ev had a good day yesterday; she was up and about most of the morning and afternoon, doing crafts & walking to the playroom. After all of this extra, new activity, her hemoglobin dipped more overnight, so she is getting another blood transfusion today. This will hopefully give her a bit more energy and help keep her oxygen from desatting at night. Small steps forward! We hope she can be discharged from the hospital early next week if all goes well.
Thank you for the thoughts and prayers.